2015 Internet2 Global Summit

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Big Data Health Initiatives: PCORI, NIH Data Commons – Collaboration, Patient Networks and Data Clouds

Time 04/28/15 04:30PM-05:30PM

Room Grand Ballroom North

Netcast sponsored by Microsoft

Netcast sponsored by

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Session Abstract

This session will discuss two complementary Big Data initiatives in Biomedicine and Health, examining opportunities for collaboration and patient networks that have been enabled by emerging changes in computing. The Patient Cen Centered Outcomes Research Institute (PCORI) is a not for profit non-governmental organization that was created as part of the Patient Protection and Affordable Care Act and is charged with “improve the quality and relevance of evidence available to help patients, caregivers, clinicians, employers, insurers, and policy makers make informed health decisions”. The National Institutes of Health (NIH) is tasked with seeking “fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to enhance health, lengthen life, and reduce illness and disability.” For both organizations, generating, managing and successfully using data at a wide range is essential to the conduct of their missions, and both are investing in next-generation capabilities to support those requirements. Attendees will learn about PCORI and how it is trying to support “research done differently”, about the critical elements that define it, how PCOR differs from conventional research, what success looks like in this unique research setting and opportunities for a platform for improving patient outcomes. Attendees will also learn about NIH investments in data clouds and the Commons a novel shared virtual space that is meant to be scalable and cost effective, while reducing the technical barriers to data sharing and makes digital objects FAIR: Findable, Accessible, Interoperable and Reusable. Finally, participants will explore the role of collaboration and engagement in improving research and health outcomes


Speaker Maryan Zirkle Patient-Centered Outcomes Research Institute

Speaker George Komatsoulis National Institutes of Health (NIH)

Presentation Media

media item thumbnail The Cornerstone of PCORI’s Vision for Big, Real-World Data Research

Speaker Maryan Zirkle Patient-Centered Outcomes Research Institute

Primary track Innovations in Advanced Networking